Dear New Insurance Company, Why? From the Mother of an Autistic Son

Dear New Insurance Company,

My autistic eight-year-old son has been in behavior therapy since he was three. Before he started, his daycare had kicked him out. He had no friends. He engaged in aggressive and self-injurious behaviors. He melted down over the slightest disruptions to routines. He couldn’t tolerate new environments. I didn’t know how to fill his big needs. Our family was in chaos and I felt like a failure as a parent.

Then, finally, we found hope through a wonderful team of behavior therapists. With their support, we started going for short outings to places like grocery stores and playgrounds. Eventually we were enjoying restaurants and visiting theme parks. He started public school and made several great friends. Sure, there were always issues we needed to work on, but with their support our family was thriving.

Three weeks ago, a change of insurance severed that lifeline.

On my first visit to my podiatrist after the switch, a billing clerk made the change in about ninety seconds. At the pharmacy, a tech scanned in our new insurance card, and my husband left with his medications. Not a hitch for either.

But that’s not my son’s story.

The day the insurance switched, his therapy stopped. The therapy company reached out to you to minimize the gap in his services. That gap’s now large enough to swallow our family whole.

I don’t understand why my podiatrist and the pharmacy were able to make the switch with no disruption in services or prescriptions. It was instantaneous. But for the therapy my son requires for him and our entire family to access the world, it’s been three weeks with no end in sight.

Do you have any idea how quickly an autistic child regresses without support in place? Progress can take months, even years. Regression happens in days.

Please, New Insurance Company, my family is depending on you.

Thank you,

Barclay’s Mom

Published by

Amy Nielsen

Amy Nielsen is a former children's librarian of nearly twenty years. She now spends most of her time obsessively pounding on a keyboard. She is the author of It Takes a Village: How to Build a Support System for Your Exceptional Needs Family, Goldilocks and the Three Bears: Understanding Autism Spectrum Disorder. Her upcoming YA Worth it debuts in May of 2024. She is also a freelance writer for The Autism Helper. When she's not writing, she and her family are most likely crusing the waters of Tampa Bay.