Our ADHD Journey

Amy shares her son’s ADHD story from initial diagnosis to ways in which her family has successfully adapted.

To say Barclay is active would be like comparing a lion to a kitten.  It’s nowhere near an accurate descIMG_7058ription! At around 2 Barclay was diagnosed with a speech disorder called Childhood Apraxia of Speech (CAS). This caused him to suffer a huge regression in speech and fine motor skills. However, his gross motor skills remained completely intact. In fact he could do things some typically developing kids physically couldn’t do.  I used to take Barclay to a kids gym and he could hang upside down on the monkey bar and then raise his feet to the bar almost flipping over.  He also had zero fear of heights.  He could jump on one foot and walk backwards with his eyes closed.  He could run for hours!

There were definitely also things we noticed that concerned us.  Barclay was impulsive to the point that it began to be unsafe.  It was as if his brain couldn’t think as fast as his body would move.  I had to constantly worry about him running into traffic or jumping off of high places.  Unless he was sleeping, it seemed as though his little body just couldn’t stop.

We took Barclay to a developmental pediatrician to see what was going on.  It didn’t take the pediatrician long before she said not only did Barclay have Attention Deficit Hyperactivity Disorder (ADHD), he had profound ADHD.  It was impacting every aspect of his life.

ADHD is a neurological disorder marked by an ongoing pattern of impulsivity, hyperactivity, the inability to focus and also impacts a person’s executive functioning skills such as planning and working memory.  No wonder Barclay struggled to learn to speak.  His body couldn’t rest long enough for his brain to catch up.  This made so much sense.

Barclay had already been receiving speech therapy and behavior therapy services, but we also realized that we needed to adapt some of the ways in which our family functioned. For example, we decided that going to public places like parks that didn’t have physical boundaries such as a fence were off the table for now. No physical boundaries for Barclay meant he needed to explore as far as the eye could see and that was a safety issue. We also had to learn to scale back our expectations of his development. Children with ADHD are approximately 20-30 percent developmentally delayed behind their same age peers. So at age 3, Barclay was just hitting many of the milestones a 2 year old would hit. That meant things like potty training and being able to dress and undress himself became lower down the list of priorities.

It has been a little over a year since Barclay received his ADHD diagnosis.  We continue to help him overcome the challenges this brings.  However, each day we also learn to look for small changes we can make as a family to help him be happy and successful.

Are there ways in which your family has adapted for your child with ADHD that have worked?  Please comment and share!

You can’t change who you are, and you shouldn’t be asked to. – Jonathan Mooney

Author: bigabilities

Amy Nielsen lives in Orlando, Florida. She is the proud mother of four children ranging in age from 3-30! She and her husband, Brent enjoy sports and traveling. Amy is a former teacher with 20 years experience, a freelance writer, and special needs advocate. Her mission is to help educate and empower families of children with disabilities to focus on their child's interests and strengths.

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